Category Archives: Blog – Living with Lupus

Carrie Sherman writes about her experiences living with lupus.

Three Things to Say to Loved Ones with Lupus

By Carie Sherman It’s hard to know the right thing to say to someone who is sick. Lupus and its ever-changing symptoms confuse everyone involved. So this week’s post is dedicated to our lupus-loved ones, providing a few things to chat about the next time you’re at a loss for words. Should you feel so inclined, consider: 1) Asking “how are you feeling?” My friend Michelle begins every conversation we have this way. At first I found her question disarming–people rarely ask. But by beginning our conversations that way, we acknowledge that dang elephant in the room, and I’m reminded that she cares. I’m grateful each time she asks. 2) Saying “you are beautiful.” “Invisible illness” my ass. Sure lupus...
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A Lazy Lupie’s Guide to Eating

3 Things That Ensure a Reasonably Healthy Meal When you’re flaring, brushing your teeth is a challenge (and that’s assuming you even got out of bed!). Cooking a healthy meal for yourself and family on those days? Fuggedaboutit! But healthy eating is a must. And over the last year, I’ve found a few things I can depend on to get through the ugliest of days. The computer. Use it to find a grocery store that delivers. Here in Denver, King Soopers will deliver your grocery list to your door. There’s a fee, but I know myself: If I went to the store, I’d blow that $10 on off-list items. Another helper? Amazon Prime’s “subscribe and save” service. It’s easy to...
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Three Things You Can Do TODAY to Make a Difference for People with Lupus

And each takes only a few minutes (and are mostly self-serving). I promise.  1) Go shopping! I’ll be putting my Amazon Prime account to good use this week by specifying Lupus Colorado (under its incorporation name of Lupus Foundation of Colorado) as the beneficiary. In addition to the regular portion of donations, Lupus Colorado will receive an extra $5 for each donation. Learn more. 2) Make room for your Amazon purchases (and have someone ELSE pick up the stuff!). Lupus Colorado depends on your support to help the individuals and families impacted by this lupus. Meet spring with a cleaner house and a do-gooder spirit by donating your unwanted clothes, goods, and household items by calling 303-231-9337. Learn more. 3)...
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Reality check quiz: 5 questions to honestly assess your sleep

By Carie Sherman Lupus presents differently in every person, but one symptom seems to be part of every Lupie’s nightmares: Fatigue. I met with my rheumy yesterday and said—as usual: ”I’m tired.” To which he replied sympathetically: “I know.” But then he did the unthinkable: He suggested a reality check. He said I might never fully understand the whys and whats of the fatigue that seems inherent with autoimmune disorders, even when they’re not actively flaring. Also, my own physical factors (sleep apnea, GERD, arthritis) can all contribute to poor sleep. Dr. M suggested I think about that which I can control. In essence, how my sleep habits impact the quality of rest I receive. So I did some research....
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5 Ways to Reuse Your Prescription Bottles

By Carie Sherman Since the first of the year, I’ve been on a mission to reduce clutter in my life. I’ve identified an area of messiness that may resonate with you: Piles and piles of empty prescription bottles.  Everytime I throw one of those little buggers into the recycling bin, a part of me freaks out: It’s so useable! I have so many! There’s got to be a better way! And, a quick search revealed an article from Consumer Reports saying curbside programs aren’t a guarantee that pill bottles will be recycled (even though most are a #5 plastic, there’s something about their size makes it hard for them to sort). So now I feel even more motivated to find...
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It’s up to you to stop me from blathering. Please, take my survey.

By Carie Sherman It’s been too long, but I’m back. And I need your help. First, a quick update. Did you know Lupus Colorado has a new executive director? We said goodbye to Debbie Lynch in 2013, who recently retired after many years at the helm of LC. She’ll be greatly missed, but she’s left us all in great hands. I recently met with our new director, Inez Robinson. There’s one thing I know for sure: 2014 will be an exciting year. Second, I’ll continue to write this blog. We’ve already built a nice community, but let’s be clear: This blog is about you. So think of me as your own personal roving reporter. What information can I provide to...
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The Lupus Card: A Gift from Me to You

By Carie Sherman I’m feeling the stress of the holidays. I bet you are too. Personally, I’ve taken on too much work. And I’m using a crazy amount of energy reigning in my inner Clark W. Griswold. But I’ll be fine, and it’s for one reason: I am the proud carrier of the Lupus Card. And I use it anytime I’m about to: Add to my list of “Must Do’s” Beat myself up about an unrealistic expectation Let myself feel guilty about this failure or that misgiving Throw myself a raging pity party Warning: The Lupus Card is not prestigious. Membership is not recommended. It offers no cash back or bonus miles. But it’s given me something money can’t buy:...
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Three Tips for Forming Good Habits (Like, Tracking Your “Three Good Things”)

By Carie Sherman Last week I wrote about the three good things challenge, and I must confess: I dropped the ball. Or rather, I keep falling asleep way earlier than I intend. I made it through four days and skipped two. So, I’ll be starting over again this weekend. (Do you have anything great to report? Share in the comments below please.) It got me thinking about how we form new habits. Some seem very easy, like finding myself at Starbucks this holiday season to partake of their caramel brulee latte. Other habits, like writing my three good things, are a struggle. So here are a few tips I found on the interwebs that actually seem pretty helpful. 1) Start...
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Five Minutes for Two Weeks Can Change Your Life: Will You Accept the “Three Good Things” Challenge?

By Carie Sherman The science is in and the results prove: A positive attitude is a key to better health. It’s as easy as taking five minutes for 14 days to reflect on the good stuff. I recently heard a researcher from Duke University speak to an audience of physicians about using the science of mindfulness to combat a bigtime problem people in health care face: burnout. And I walked away with a tool–and a challenge–for us chronically ill sorts. A Scientific Formula for Increasing Your Own Resiliency I’ve never met a more resilient bunch than the people I know who have lupus. But day after day of feeling hungover (sans awesome levels of consumption the night before) can leave...
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Colorado’s Anti “Puffing” Law Impacts People Living with Chronic Pain (And Other Thoughts I Should Be Forgiven For)

By Carie Sherman Holy change in weather, batman! I’ve been hurting so badly and had no idea why, until my mom reminded me that Grandpa Harold always said he knew when the weather was changing because he felt it in his bones. And then there’s my BFF, who doesn’t have an autoimmune condition yet complains of pain and weakness in her bum knee. Poor girl. Her bum knee is the result of having an airhead for a “spotter” who let her fall and tear her ACL during cheerleading practice. In my defense, I had a Tootsie Pop in my hand. Who knows what might have happened if I’d been a good spotter? Maybe she’d have had to cut a lollipop...
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