Category Archives: Newsletters

Lupus Colorado newsletters.

March 2014 Newsletter

Colorado lupus patients represented at nation’s capitol The voice of lupus resounded throughout the U.S. Capitol as the Lupus Research Institute’s National Coalition (pictured right) visited more than 50 legislators and staff for 2014 Lupus Advocacy Day this month. Inez Robinson, executive director of Lupus Colorado, was there to represent those in Colorado who live with lupus and to advocate for lupus research and improved care. Robinson urged those in Colorado to make their voices heard. Those who want more attention given to lupus can become virtual advocates without ever leaving home. “Help amplify and multiply the impact – the louder we speak, the more Congress will listen,” Robinson said. Visit the LRI Legislative Action Center to learn more about the...
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February 2014 Newsletter

Collaboration pushes forward to find treatments for lupus By Lupus Research Institute Scientists are collaborating to accelerate the process for finding new treatments for lupus and other autoimmune diseases. The Alliance for Lupus Research (ALR) and the Lupus Research Institute (LRI) are proud to join the National Institutes of Health (NIH)in the Accelerating Medicines Partnership (AMP) recently launched to work on new treatments. The new $230 million collaboration will harness the collective knowledge and resources among the NIH, biopharmaceutical companies, nonprofit organizations and academic communities. Recognizing that no new targeted therapies exist for severe lupus, the new consortia will work to better understand the disease and uncover new targets for drug development. A total of $41.6 million is allocated specifically to the autoimmune diseases lupus and rheumatoid arthritis. “We...
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November Newsletter

Remember Lupus Colorado On Colorado Gives Day Mark your calendars and tell your friends! Colorado Gives Day is right around the corner. On Dec. 10 your donation to Lupus Colorado will be leveraged by the Community First Foundation. For 24 hours, donations will be accepted through the websiteColoradoGives.org. Please log on on Dec. 10 and support Lupus Colorado! “Colorado Gives Day puts Colorado’s non-profits in the forefronts of people’s minds,” said Lupus Colorado Executive Director Debbie Lynch. “It’s an opportunity to reflect on what causes are important to you and give — knowing that your money will be leveraged and the impact of your gift made greater.” Colorado Gives Day is an online giving initiative created by the Community First Foundation and...
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October Newsletter

LC honored by Colorado Healthcare Communicators Debbie Lynch (third from right) was honored as Professional of the Year by Colorado Healthcare Communicators. She is supported by (left to right) administrative assistant  Gayna Warren, board member Carol Wright, board member Peggy Gibson, blogger Carie Sherman, (Lynch), special events contractor Rhonda Jackson, communications contractor Michelle Ancell. Lupus Colorado was honored with three awards at the Colorado Healthcare Communicator’s Gold Leaf Awards in October. Executive Director Debbie Lynch was named Professional of the Year by the Colorado Healthcare Communicators. “The board and staff at Lupus Colorado know the outstanding work done by our President and CEO Debbie Lynch,” said Carol Wright, Chair of the Lupus Colorado Board of Directors.  “Her tireless efforts on behalf...
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September Newsletter

People Of European Of African American Descent May Be A Great Risk For Lupus Lupus nephritis is more common in people of European or African-American descent with two specific genes according to research just published by David W. Powell, PhD, of the University of Louisville, and colleagues in the online edition of the Journal of the American Society of Nephrology.  About half of all lupus patients develop lupus nephritis. The varied incidence rates of the condition between ethnic groups suggests genes may play a role. Vote for LC in Citywide Banks’ Charity Hand-Up Contest LUPUS FOUNDATION OF COLORADO is one of seven local charities nominated in Citywide Banks’ Charity Hand-Up Contest taking place October 1-14, 2013. The Denver/Boulder community is invited to vote for a...
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August Newsletter

Watch for Connect for Health Colorado marketplace For those who suffer from chronic illness, accessing insurance at an affordable cost is a huge concern. Colorado consumers should know that the insurance climate in the state is undergoing a big change with Connect for Health Colorado. CHC will be a one-stop marketplace where Coloradans can shop and compare health insurance plans.  The goal of the new online marketplace is to increase access, affordability and choice, for individuals and small employers looking to purchase health insurance in Colorado and to provide a simpler, smarter shopping experience. Connect for Health Colorado will open in October, with health coverage taking effect January 1, 2014.  Read more here. More than a support group Delrece Moore Walking...
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July Newsletter

 Lemonade from a Lemon: Delaying the Large Employer Mandate for Coverage By Ryan Biehle, Health Policy Associate Colorado Consumer Health Initiative In a surprising announcement earlier this month, the Treasury Department decided to postpone the employer mandate, as it is called, in the Affordable Care Act (ACA) until 2015. One of the key provisions of the law, the mandate requires employers with over 50 employees to either offer health coverage to their workers or pay a per-employee penalty. It seems nobody saw the decision coming and speculations on the consequences ran rampant. Thankfully, the shock has worn off and implementation of the ACA is moving forward with few impacts. Read full story. LRI $2 Million For Lupus Medical Education In 2014...
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June Newsletter

Lupus Colorado Annual Report Available As a small disease-specific organization our vision is to be the best resource for people in Colorado impacted by Lupus with emphasis on the newly diagnosed. Our mission to improve the quality of life for people living with lupus through community education, client services, support of research and advocacy guides our decisions. Please take time to review our annual report to see how we work to stay true to our mission, how our finances are managed and how so many people come together to help make our organization successful!   Q&A on progress with lupus research The digital edition of the Autoimmune Awareness Supplement to the Washington Post includes this Q&A session with LRI’s President Margaret Dowd on what lupus...
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May Newsletter

LRI launches federal provider program Singer Toni Braxton Shares Personal Story of Lupus The Lupus Research Institute (LRI) National Patient Coalition participated in today’s launch of the Lupus Initiative®, the culmination of its five-year advocacy campaign resulting in $4.6 million in Federal funding to make the healthcare provider education program possible. Helping to draw attention to the need addressed by the Initiative to train professionals in lupus diagnosis, six-time Grammy award winning singer Toni Braxton shared her personal story as a lupus patient and Board member of Lupus LA, an LRI Coalition partner. “It took years to be diagnosed with lupus,” said Ms. Braxton. “There were so many signs like joint pain and extreme fatigue, but it wasn’t until my white blood cell count...
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April Newsletter

Client Support in the 21st Century From Debbie Lynch, CEO One of the issues we have struggled with for the last 10 years is how to facilitate providing support, other than financial assistance, for those with lupus and their families. In the early part of the decade we organized support groups, 18 to be exact, in various parts of the state. A written manual and training were available for group leaders as was a quarterly stipend for meeting expenses. About 9 months into the first year, imagine our surprise when we were ready for the quarterly conference call and no one called in! Follow up phone calls found that for various reasons groups were not meeting, had disbanded altogether or had...
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